Community Survey

Why should we share information with Cure MLD? 

You are smart to hesitate, however, in order to help families and update patient families on clinical trials, progress on newborn screening, and other news, we need to know about you and your family. We also want to be able to contact you. 


The information is secured and managed professionally by Cure MLD.  Our survey is SSL and HIPAA certified and the information you provide will not be shared.  


Cure MLD also provides emergency grants, travel scholarships, care packages and online webinar programs.  


That's why we need to know how to find you. 

Also, as a thank you gift, each MLD family receives a care package and an Amazon gift card to thank them for their assistance.  

Contact us at to learn more.  

You may choose not to answer any questions in the survey.


Thank you, 

The Cure MLD Team

Thank you for taking the time to complete this survey. We will be happy to provide you with a $25 Amazon gift card for your time. Also, a $20 gift for additional referrals.

The information in this survey will be kept confidential and only be used to help support MLD families.


We invite you to share photos and submit a story about your loved one here so we can feature your family on the Cure MLD website and other ancillary websites.


Snail Mail

PO Box 2866

Bala Cynwyd PA

19004 USA


Visit our CROWDRISE Page to show your support

By Email

Please contact us today to learn more about supporting Cure MLD

Over the Phone

Please call today to speak with one of our family support members

Coming soon